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What is this project about and why is it important?

This project is supported by the Canadian Dementia Learning and Resource Network at the Schlegel-UW Research Institute for Aging (RIA) and funded by the Public Health Agency of Canada under the Dementia Community Investment (DCI). These funded projects are actively developing and testing tools, resources, and approaches to promote the well-being of persons living with dementia and care partners.

Ten Online Modules over Ten Weeks for Adult Learners (TOTAL) eLearning is a ten-week-long online dementia education program designed to meet the complex learning and support needs of informal care partners of people living with dementia. The project builds on existing workshops that are offered by the McGill Dementia Education Program (DEP) by offering the training in a virtual format so that care partners can access education and support in a flexible environment that meets their needs. The goal of the project is to decrease the social isolation of informal care partners and increase knowledge about dementia.  The virtual format includes content relevant to the COVID-19 pandemic, is available in both French and English, and includes a virtual support community for participants to seek extra support during and after the 10-week program. This project is being designed and developed by the Office of Ed-TECH (Education Technology and E-learning Collaboration for Health) team at McGill’s Faculty of Medicine and Health Sciences.

Who is this project for?

This project is intended for informal care partners of people living with dementia in Quebec, including Montreal and remote communities in rural parts of the province.

3 Key Takeaways

Taking a community-based participatory research approach, this work aims to achieve the following goals:

  1. Exploring and documenting the needs of the informal care partners of PLWD of diverse backgrounds in Quebec.
  2. Providing educational material that meets the needs of the informal care partners of PLWD of diverse backgrounds in Quebec. 
  3. Providing a space for virtual community support for the care partners of PLWD of diverse backgrounds in Quebec.

Project Details

Duration: 2021-2023

Organization Lead(s): McGill University

Project Team:

  • Dr. Tamara Carver, Principal Investigator

  • Dr. Gerald Fried, Co-Investigator

  • Dr. Serge Gauthier, Co-Investigator

  • Dr. Isabelle Gélinas, Co-Investigator

  • Dr. Claire Godard-Sebillotte, Co-Investigator

  • Dr. José Morais, Co-Investigator

  • Claire Webster, Co-Investigator

  • Sarah Aboushawareb, Co-Investigator

Project Partner(s):

Office of Ed-TECH (Education Technology and E-learning Collaboration for Health) Design and Development Team :

  • Dr. Tamara Carver, Director
  • Devon McIntyre, Lead Instructional Designer
  • Dylan Sheper, Multimedia Content Creator
  • Jennifer Gauthier, Course Developer
  • Christina Laccone, Instructional Designer
  • Annick Beaudry, Program Administrator
  • Maria Vincelli, DEP Coordinator
  • Daniel Escobedo, Multimedia Content Creator
  • Alexandria Haber, Writer

This project is funded by the Public Health Agency of Canada under the Dementia Community Investment (DCI).