What is this project about and why is it important?

This project is supported by the Canadian Dementia Learning and Resource Network at the Schlegel-UW Research Institute for Aging (RIA) and funded by the Public Health Agency of Canada under the Dementia Community Investment (DCI). These funded projects are actively developing and testing tools, resources, and approaches to promote the well-being of persons living with dementia and care partners.

The Supporting a Circle of Care project engages with First Nation, Metis, and Inuit community partners and Elders to identify the unique needs of Indigenous caregivers of persons living with dementia. The development of culturally safe and trauma-informed resources supports and enables improved access to caregiver supports, reduces social isolation and caregiver burnout, and increases the knowledge and awareness of dementia in rural and remote Indigenous communities.

Who is this project for?

Indigenous caregivers of people living with dementia in rural and remote communities.

Resources this project has created

3 Key Takeaways

  1. Looking at the unique needs of Indigenous caregivers of PLWD and propose self care strategies rooted in Indigenous knowledge.
  2. Developing a pathway of support networks for those living with dementia and their caregivers which can essentially bridge the gaps to receiving ongoing care and having their questions answered in a timely manner.
  3. Dismantling the stigma against Indigenous people-racism, discrimination (giving our people a voice as they are usually underrepresented in research) & advocating for more cultural competency training for professionals and considering the needs of rural and urban communities who need care. Taking into account the diverse and various environments they live in (e.g., lack of resources or support, having to travel long distances for support and healthcare, and making informed decisions). 

Project Details

Duration: 2019-2023

Organization Lead(s): Native Women’s Association of Canada

Project Team:

  • Laura Alfaro, Dementia Project Coordinator

Project Partner(s):
  • Laurentian University
  • Schlegel Center for Advancing Seniors Care
  • Canadian Remote Access for Dementia Learning Experience (CRADLE)
  • Jennifer Walker McMaster University
  • Nunavut Inuit Women’s Association (North)
  • Six Nations (South)
  • Community liaisons in Saskatchewan (West) and New Brunswick (East)

This project is funded by thePublic Health Agency of Canada under the Dementia Community Investment (DCI).