Implementation and evaluation of an interactive paper-based resource and mobile application designed to support relationship-building between caregivers and care providers of persons living with dementia, in two Alberta long term care homes, First Nations communities across Canada and South Asian communities in Ontario.
Who could benefit from reading this?
Review the Before you begin section for foundational knowledge that will be helpful for any dementia community initiative.
Key information
Who is this project for? Care partners of people living with dementia, including family/friend care partners and healthcare providers.
Project Lead: SE Research Centre (the applied research centre embedded in SE Health)
Project partners: SE Health Seniors Living Division, SE Health First Nations, Inuit and Métis Program, J5 Service Design, Alzheimer Society of Ontario
Project status: complete, 2023-2025
Get in touch:
Paige Fernandes, Project Manager, SE Research Centre
Project story
Background:
The Our Dementia Journey Journal (ODJJ) responds to the need for better communication and stronger relationships between care providers and caregivers that was identified through over five years of co-design research with over 80 experts-by-experience. The initial ODJJ prototype was created through six co-design sessions with caregivers and care providers in an Ontario long-term care (LTC) home community. Subsequent funding enabled adaptations with and for First Nations and South Asian communities across Canada. In this project, the SE Research Centre along with their partners are deploying the ODJJ and evaluating its implementation and impact in three settings: LTC homes in Alberta, South Asian communities in Ontario and First Nations communities across Canada. Findings will inform a sustainability plan to make the ODJJ accessible to all Canadians after the funding ends.
Impact
Insights
Production of this project has been made possible through funding from the Public Health Agency of Canada (PHAC). The views expressed herein do not necessarily represent the view of the Public Health Agency of Canada.